Second International CAMK2 Therapeutics Network Summit
CAMK2 Therapeutics Network staff and expert scientists and clinicians from around the world met in July 2025 in Orlando, Florida to create the CAMK2 Therapeutics Network Research Roadmap, available here. This plan outlines key priorities to speed progress toward better care and treatments, including building shared data resources, expanding long-term research studies, strengthening patient and research partnerships, establishing specialized clinical centers, improving tools to track disease, testing potential therapies, and advancing drug and gene-based treatment options.
GRINCON25
Staff from the CAMK2 Therapeutics Network attended the July 2025 GRICON conference, which brings together researchers, clinicians, industry partners, and patient advocates focused on rare and genetic conditions. GRICON’s emphasis on collaboration, data sharing, and accelerating therapies closely aligns with the CAMK2 Network’s mission to advance research, improve clinical care, and drive treatment development for CAMK2-related disorders. Participation in GRICON allowed the CAMK2 Network to connect with the broader rare disease community, share insights, and build partnerships that support faster progress toward effective therapies.
Chan Zuckerberg Initiative Rare as One Network Meeting
CAMK2 Therapeutics Network staff attended the May 2025 Chan Zuckerberg Initiative Rare As One meeting in Las Vegas alongside many other patient advocacy organizations focused on rare diseases. As recipients of a five-year, $800,000 CZI capacity-building grant, the CAMK2 Network participated in discussions centered on strengthening advocacy organizations, sharing best practices, and building sustainable programs that accelerate research, improve patient support, and advance therapeutic development for rare disease communities.
The First International CAMK2 Therapeutics Network Summit
Held in Washington D.C. in November 2023, this meeting brought together CAMK2 families, researchers, clinicians, and industry partners from around the world to align on priorities and accelerate progress toward treatments for CAMK2-related conditions. This inaugural summit fostered collaboration, knowledge sharing, and community building, laying the foundation for a coordinated global effort to advance research, improve clinical care, and drive therapeutic development.
