Parent Board
Sarah Pace lives in Texas with her husband Tom, daughter Emma who has a CAMK2B mutation, and daughter Hannah who is neurotypical, and as an engineer and dedicated advocate, she focuses on supporting children with CAMK2 disorders and strengthening the community through guidance and solutions.
Staff
Scientific Advisory Board
Dr. Danielle Veenma, M.D. is a clinical geneticist and physician–scientist at Erasmus Medical Center in Rotterdam whose work includes describing and interpreting CAMK2-related neurodevelopmental disorders through detailed patient phenotyping and genotype–phenotype correlation.
Dr. Meg Stratton, Ph.D., is a professor at University of Massachuetts where she studies how CaMKII’s unique molecular properties enable synapse formation, maintenance, and long-term memory.
Dr. Kiki Chang, M.D., is a child, adolescent, and adult psychiatrist in private practice in Palo Alto and a former Stanford School of Medicine faculty member. He directed the Pediatric Bipolar Disorders Clinic and co-founded the PANS Clinic.
Florian Eichler, M.D., is a Professor of Neurology at Harvard Medical School and director of the Leukodystrophy Clinic at Massachusetts General Hospital. His research focuses on the genetics and metabolism of peroxisomal and white matter disorders.
