Our focus is family

Making connections, sharing stories, and improving life for our children affected by CAMK2 mutations

OUR MISSION

The CAMK2 Therapeutics Network is a family-led, collaborative research initiative dedicated to improving the lives of individuals affected by CAMK2 gene-related disorders.

We are committed to supporting the CAMK2 Community through:

1) Educating families, clinicians, and scientists

2) Expanding access to diagnosis, research, and expert care

3) Accelerating treatments through strategic partnerships.

 Our relentless goal: relieve symptoms and enhance quality of life for every affected individual worldwide.

LEARN MORE ABOUT CAMK2 THERAPEUTICS NETWORK 

MAKE A DONATION

Support the CAMK2 Therapeutics Network by making a tax-deductible donation through our GiveButter page or by check. As a 501(c)(3) nonprofit (EIN 39-2150859) and Candid Silver–certified organization, every contribution helps us connect families and patients with researchers, care, therapeutics, and the latest developments in the field.

DONATE ONLINE

If you wish to donate by check, please address to: CAMK2 THERAPEUTICS NETWORK INC and mail to 1330 California Ave, Palo Alto, CA  94306

Many employers will match your donation to double or triple your impact for CAMk2 research and family support.  CAMK2 Therapeutics Network is on Benevity.  Check to see if your employer uses Benevity for employee donation matching.

UNDERSTANDING CAMK2

CAMK2 is a group of four genes that play a key role in how the brain and heart function. These genes send instructions to the body to make proteins that help nerve cells communicate and support overall development. When there’s a change, or variant, in one of these genes, it can affect how those proteins work, which can lead to CAMK2-related disorders.

CAMK2-related disorders can show up in many ways, and symptoms can be different for each person. Common challenges include developmental delays, learning difficulties, seizures, low muscle tone, trouble with movement or coordination, speech or language delays, and behavioral differences. Scientists are still learning how these gene changes affect people over time. Ongoing studies are helping researchers understand each variant better and work toward new treatments and support for families.

LEARN MORE ABOUT CAMK2-RELATED DISORDERS

GET INVOLVED

If you’ve been recently diagnosed or want to support our mission, there are several ways to get involved.

  • Signup for our CAMK2 Newsletter
  • Donate to support our cause.

  • Contribute to our Community Discussion Forum (Coming Soon).

  • Share your story to spread awareness.

  • Participate in research studies.

  • Follow us on social media.

  • Contact us with any questions (info@camk2.org).